Pssst can you keep a secret??

I didn't want to say anything through fear of jinxing myself,however after speaking to the doctors this morning during ward round it seems the plans are moving forwards… we are making plans for my surgery to happen this Tuesday coming!! In March my stoma surgery was postponed, since then we've had a desperate few months going through the motions of...
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Re-introducing me!

I figured it wouldn't hurt to re introduce myself to get to know everyone here a bit better- especially since there's a few new people here...if you're one of those- welcome!  My name is Evie Olivia Toombes and I'm 18years old I have a few severe chronic illnesses (Spina Bifida, Gastroparesis, Pseudo obstruction, Cauda Equina Syndrome, Gilbert...
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#thankyouNHS

 Another emergency infusion of potassium today at our local hospital. Every time I come out of hospital I feel so lucky to be able to leave, and go home for a couple of days to my family. At the moment so many patients are unable to leave hospital for a prolonged period of time, others may not make it out at all due to both indirect and direct...
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Straight back to hospital

 I've gone from needing infusions once a week to needing them every other day. Blood test results are all over the place and we have no clue as to what's causing it, but at least there's a reason I feel like a wet sock and keep collapsing at night.🙁 Safe to say I miss riding Daisy and competing so so much- it feels a world away from my current...
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Bringing the Easter cheer to hospital!

  I'm hoping the Easter bunny will bring me some extra potassium so I can stay home this bank holiday weekend! 🐣We're always trying to make the 8hour infusions a bit more fun, so when mum found a pair of bunny ears it seemed only fitting to wear them for my infusion. Me and Spud spent the morning playing pro Easter bunnies, planning an eg...
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Daisy update!

 A whole week of not seeing Daisy has got me feeling quite lost at the moment- having her usually gives me something consistent in life that I can rely on so not having that to balance all the struggles with my health is taking a lot of adjusting to. (Even though I've become far too weak to ride over the past few days.) It certainly brightened...
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The new normal it seems!‍️

I'm slowly adjusting to the changes we are all making to everyday life so far. It feels unfamiliar, strange and worrying- but with the reason behind these measures it is so necessary and important. I tried to get my Find A Way Not An Excuse head on (as I like to call it when I need to stop moping around!) yesterday I began to structure my days a li...
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Will my surgery be postponed? COVID-19

 Feeling suitably grim and unfortunately with news to match!🙈🙁 Me, mum, the gastro Dr and the colorectal surgeon all met today during wardround to speak. Due to the current climate our NHS has been dropped into with little notice, and the top priority being minimising risks for all patients, the decision has been made to postpone my surgery un...
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Day 6 and sleep feels like a distant memory

It's been a quiet couple of days as we don't see the doctors over the weekend unless there's an emergency. The past week has felt quite hectic and I'm still finding my feet with being in hospital all over again. Being an inpatient, inside four walls 24/7 and being surrounded by poorly people feels worlds away from my lifestyle at home in the fresh ...
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Day 4 - Evacuation day

Definitely a 'Find a Way Not an Excuse' kind of day!!!😳 Today has been eventful to say the least. Out of the entire hospital it was my ward that has been named the COVID-19 isolation ward…which meant we had the evacuate the whole ward and move all 22 patients to another place. F22 is highly specialist in the treatments they provide that are very hi...
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